It's funny. I haven't yet been diagnosed with TN. Officially. (More on that later) But here's how I got where I am. And please be tolerant of the detail in this important post. It's a sorry milestone in my life, yes; but I also want to record it chapter and verse for anyone who comes here in a similar situation. (... read more)
Category: The Painstream Journal
Journal: a daily record, as of occurrences, experiences, or observations. So this is journalling the journey
What it’s like…
A couple of YouTube videos. And I don't know which one is the more scary. #1: MSNBC made this video piece on Amanda Young, a TN sufferer, seven years into her developing the condition. This is bravery and endurance beyond the pale, because if you are a fitness instructor with TN, here's a (weak) analogy: … Continue reading What it’s like…
Fatigue
About a week ago - which was a couple of weeks into my current series (I'm still trying to find right nomenclature for this thing and its aspects/forms) I realised around one midday that I was absolutely wasted. I barely made it to the couch before crashing. It was unusual: Sure, I am a bad … Continue reading Fatigue
July 8, 2018
It's a month since a searing series of spikes announced that my life had just careened round a corner into Painland, initiating my my visit to Emergency and my learning that I'm probably headed towards TN. And I say "probably headed towards" because my neurology appointment is still a month away. And a definite diagnosis? … Continue reading July 8, 2018
November 15th: The Beast is Back
I've been thinking of the novel, "The Exorcist", quite a lot in the past week. It is a superb book made into a superb movie. I don't think William Peter Blatty, who wrote the book, ever surpassed it - before or after. And yes, I am a fan of the horror genre. But this book … Continue reading November 15th: The Beast is Back
Not Only When I Laugh... 